About Owen Payton

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Hi, my name is Owen Matthew Payton and this is a little about me. I am 7 years old.  I have a younger sister, Juliet who is 5 and a younger brother, Tredway who is 1. We also have 2 dogs, a chocolate lab named Allie and a yellow lab named Mollie. 

I was born on March 1st, 2006. I was born with multiple congenital heart defects. I was born with double outlet right ventricle (DORV), a ventricle septal defect (VSD), pulmonary stenosis (PS), and transposition of the greater arteries.

I have had three open heart surgeries, the first surgery was the BT Shunt in March 2006, when I was just six days old. Then I had the Bi-Directional Glenn in October 2006 when I was 8 months old.  I came out of that surgery with a chylous effusion which caused me to need a thoracic duct ligation surgery in December 2006.  Then, I had my third open heart surgery, the Fontan, when I was a little over 3.5 years old in December 2009.

The first 16 months of my life I was fed by NG tube but I’m eating by mouth now thankfully to a special doctor and team that helped me through therapies.  

I also have been diagnosed with Hemiparesis Cerebral Palsy (CP) on my right side and have had three complex partial seizures. Also during my Fontan surgery, my surgeons put in a Pacemaker, so now I am paced at 90 if my heart rate dips below.

In August 2010 I was diagnosed with Protein Losing Enteropathy (PLE), a complication of the Fontan meaning my body doesn’t hold on to proteins anymore so I am currently on a steroid called Entocort that is helping maintain my protein levels. 

I was listed on the waiting list for a heart March 9 2012. My transplant status was put on-hold for a few months when my PLE was under control, but as of November 2013, my parents and doctors reactivated my listing to status 1b.  

Thanks for visiting my COTA website.

My mom and dad always like to meet new people that want to share in my journey.

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With the cost of a transplant often exceeding $500,000, many transplant families are unable to shoulder the financial burden of such a procedure.  The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses.  In West Chicago, volunteers are raising funds for COTA in honor of transplant patients like local boy, Owen Payton.  

Owen is the son of Chris and Christina Payton.  Born on March 1, 2006, Owen was diagnosed with heart failure, and doctors at the Lurie Children’s Hospital in Chicago, Illinois, have recommended a life-saving heart transplant.  An estimated $60,000 is being raised by West Chicago volunteers.